FSHD testing - MyFSHD
FSHD testing - MyFSHD
Oct 23, 2024
myfshd.org
FSHD Global Research Foundation, Australia's Peak Body for FSHD, has created the "𝗖𝘂𝗿𝗲 𝗙𝗦𝗛𝗗" 𝗖𝗹𝗶𝗻𝗶𝗰𝗮𝗹 𝗧𝗿𝗶𝗮𝗹 𝗣𝗮𝘀𝘀𝗽𝗼𝗿𝘁 𝗣𝗿𝗼𝗴𝗿𝗮𝗺 to remove financial barriers and help Australian families access comprehensive diagnosis. We guide them through every step of the journey to receive their fully funded full body MRI scan—giving them the clarity and answers they need. It makes them ready for future therapies. Learn more about the program: https://www.youtube.com/watch?v=t
2:25
FSHD Global Research Foundation, Australia's Peak Body for FSHD, has created the "𝗖𝘂𝗿𝗲 𝗙𝗦𝗛𝗗" 𝗖𝗹𝗶𝗻𝗶𝗰𝗮𝗹 𝗧𝗿𝗶𝗮𝗹 𝗣𝗮𝘀𝘀𝗽𝗼𝗿𝘁 𝗣𝗿𝗼𝗴𝗿𝗮𝗺 to remove financial barriers and help Australian families access comprehensive diagnosis. We guide them through every step of the journey to receive their fully funded full body MRI scan—giving them the clarity and answers they need. It makes them ready for future therapies. Learn more about the program: https://www.youtube.com/watch?v=t
1.3K views5 months ago
FacebookFSHD-Global Research Foundation
FSHD Global Research Foundation welcomes the recent update from Epicrispr Biotechnologies reporting early clinical activity and a favourable safety profile in their ongoing first-in-human study of EPI-321 for facioscapulohumeral muscular dystrophy (FSHD). Early data from this open-label study show safety and exploratory measures of biological activity in a small number of participants, with no serious adverse events reported to date. This is an important scientific milestone in FSHD research, an
0:11
FSHD Global Research Foundation welcomes the recent update from Epicrispr Biotechnologies reporting early clinical activity and a favourable safety profile in their ongoing first-in-human study of EPI-321 for facioscapulohumeral muscular dystrophy (FSHD). Early data from this open-label study show safety and exploratory measures of biological activity in a small number of participants, with no serious adverse events reported to date. This is an important scientific milestone in FSHD research, an
755 views4 months ago
FacebookFSHD-Global Research Foundation
Urgent wait for treatments: The race against time in the fight against FSHD, a genetic muscle disorder
Urgent wait for treatments: The race against time in the fight against FSHD, a genetic muscle disorder
Oct 11, 2024
triblive.com
Satellos CEO Frank Gleeson on SAT-3247 Interim Trial Updates and Upcoming Catalysts
49:41
Satellos CEO Frank Gleeson on SAT-3247 Interim Trial Updates and Upcoming Catalysts
295 views1 month ago
YouTubeMolecules and Minerals
2025 Sydney Chocolate Ball - CEO & Managing Director, Emma Weatherley and Ambassador, Zaharrah
12:49
2025 Sydney Chocolate Ball - CEO & Managing Director, Emma Weatherley and Ambassador, Zaharrah
46 views5 months ago
YouTubeFSHDGlobalResearch
Charlie's Story. Living with FSHD.
4:37
Charlie's Story. Living with FSHD.
1 views1 month ago
YouTubeAcentricAdam
1:29
What is FSHD Connect?
97 views1 month ago
YouTubeFSHD Society
2:44:34
MDI's FSHD Community Gathering: Connection, Knowledge and Community
8 views3 weeks ago
YouTubeMuscular Dystrophy Ireland
Oxford Nanopore-based structural and epigenetic profiling of D4Z4 arrays in FSHD | Rebecca Stubbs
489 views4 months ago
linkedin.com
6:54
FSH Muscular Dystrophy
63.3K viewsFeb 9, 2014
YouTubeFSHDGlobalResearch
7:54
Into the Light - The FSH Society's journey to solve FSH muscular dystrophy
21.8K viewsNov 13, 2016
YouTubeFSHD Society
4:40
Lexi Pappas, a story about filmmaking and FSH muscular dystrophy
14.1K viewsNov 2, 2018
YouTubeFSHD Society
2:22
Trunk Stabilization EXERCISES
2.2K viewsSep 4, 2020
YouTubeFSHD Society
5:11
FSHD genetics
1.4K viewsNov 7, 2020
YouTubeMyFSHD
51:08
AMA: Answering Your Questions About FSHD
466 views4 months ago
YouTubeFSHD Society
4:55:33
2023 FSHD Patient Day
161 viewsJun 16, 2023
YouTubeUR Medicine
0:30
Facioscapulohumeral Muscular Dystrophy
44K viewsJun 23, 2023
YouTubeOsmosis from Elsevier
2:40
FSHD Global Research Foundation
1.1K viewsJun 3, 2016
YouTubeFSHDGlobalResearch
6:40
FSHD Documentary 2019
11.4K viewsJun 24, 2019
YouTubeFSHDGlobalResearch
10:38
FSH Muscular Dystrophy Documentary
71.6K viewsOct 2, 2012
YouTubeFSHDGlobalResearch
2:09
FSHD Patient’s Diagnostic Journey
1.6K viewsMar 31, 2021
YouTubeCheckRare
1:07:10
Fitness Training with Mitch Wade
496 viewsSep 19, 2024
YouTubeFSHD Society
33:19
Canadian Neuromuscular Disease Registry & BetterLife FSHD
52 views11 months ago
YouTubeFSHD Society
3:43
FSH Muscular Dystrophy 101
6.8K viewsSep 29, 2021
YouTubeFSHD Society
6:52
FSHD 101 - An Easy Explanation
496 views3 months ago
YouTubeFSHD Society
1:58
2025 Sydney Community Update Meeting
95 views7 months ago
YouTubeFSHDGlobalResearch
25:33
FSHD Clinical Research and Clinical Trials
168 views9 months ago
YouTubeFSHD Society
59:08
FSHD University – Update from Avidity Biosciences
1.4K views10 months ago
YouTubeFSHD Society
1:05:39
Fulcrum’s Phase 3 Clinical Trial
1.6K viewsMar 29, 2022
YouTubeFSHD Society
See more