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3:44
Meet the Doré family: Jason, Katharine, and their daughters, Mary-Cynthia and Edith. Jason, Mary-Cynthia, and Edith all share a diagnosis of Multiple Hereditary Exostoses (MHE), a rare genetic disorder characterized by the growth of multiple benign bone tumors (osteochondromas). These growths can cause chronic pain, limit joint movement, affect limb alignment, and often require repeated surgeries during childhood and adolescence. For Jason, connecting with the Paley Institute meant hope that his
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