News

Hurricane preparedness can involve some extra considerations for those with hemophilia, says columnist Jennifer Lynne, who shares some tips.
Columnist Joe MacDonald describes his early adjustments to cope with the reality of his oldest son's hemophilia.
While packing for a move, the youngest son of columnist Cazandra Campos-MacDonald experiences a regular guest: joint pain.
G Shellye Horowitz, MA, PPS has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. Shellye has hemophilia A. Her advocacy work includes an ...
Like many with hemophilia, columnist G Shellye Horowitz requires IV infusions of her medication — but the scars can raise some eyebrows.
Certain immune markers in the blood may help predict ITI response among hemophilia A patients given immune tolerance ...
Columnist Alliah Czarielle shares how, for her husband, who has hemophilia, finding strength requires acute self-awareness.
Preventive treatment with Pfizer's Hympavzi can reduce bleeding rates in hemophilia A or B patients with inhibitors, new ...
Practice active listening to help ground a person who's anxious about hemophilia concerns. Columnist G Shellye Horowitz tells you how.
Teaching children with hemophilia resilience sets them up for emotional health in the long term. Jared Formalejo shares research-backed tips.
Columnist Joe MacDonald shares his practical advice for how to help a child define their identity beyond their hemophilia diagnosis.
Many with hemophilia endure infantilizing by caregivers, most of it unintentional. Columnist Alliah Czarielle describes how to avoid this.