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30% of Children with Rare Diseases Won’t Live to See Their 5th Birthday—And the Government Just Made It Clear They Don’t Care.
Last week, the NIH and FDA announced that they are cancelling Rare Disease Day for 2025. Rare Disease Day (held annually on the last day ...
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Medicaid Fraud: Unmasking the Real Culprits While Protecting Our Disabled Children
A new proposed budget in Congress includes over $880 billion (yes with a B) in Medicaid cuts over 10 years. The justification for the cuts includes reasons like “unnecessary usage” and fraud.” My son ...
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No Medicaid, No Care: The Fight to Protect Healthcare for Disabled Kids
Every parent wants their child to thrive. But for millions of families raising children with disabilities, that dream hinges on one essential program: Medicaid. From covering life-saving therapies to ...
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Boycotting for the Long Haul: How to Survive and Thrive Without Big Corporations
Ditch big corporations for good! Learn how to boycott long-term with smart swaps, local alternatives, and survival tips to ...